Thursday, January 24, 2013

My Bathroom Pass


In my wallet, I carry around a "Bathroom Pass"- or at least that is what I call it. It is a laminated official card made by the Foundation of Clinical Research for Inflammatory Bowel Disease that helps patients to be able to use a restroom anywhere, at any time and fast, whether it is a public restroom or not. I have read some articles and heard some opinions that this is not needed. Some may think this is over the top or silly. It certainly is not.

People with inflammatory bowel disease really cannot hold it long or not at all. If I do not get to restroom fast when I need one I feel as if i'm very close to having an accident and it makes me dizzy and nauseous. Thankfully, I have not had an accident since my diagnoses, but I always make sure I am close to a bathroom, especially when I am flaring.

Last weekend, I almost had to pull out this bad boy. I kind of wanted to, it makes me feel more in control of my disease. I was shopping around in Anthropology (love that store!) in Tulsa, and all of a sudden I did not feel good. I had to go-now. I urgently searched a worker and asked where the bathroom was. She said it was only for employees. I asked her where the closest restroom was, and she she that it was way across the parking lot at a Starbucks on the other side of the shopping center. I told her I have Crohn's disease, and need to use their restroom immediately. Thankfully, the worker quickly grabbed her manager and they escorted me to the toilet. I know it is not always this easy in retail stores though.

I am thankful for sympathetic retail workers and my card to back me up to prove my condition. Sadly, Oklahoma is not a state that has passed the Restroom Access Act, also known as "Ally's Law."

"This advocacy movement is named for Ally Bain, who has Crohn’s disease, a type of inflammatory bowel disease (IBD). Several years ago, as a young teenager, Ally had an accident in a store after her request to use the employee restroom was refused, despite her explaining repeatedly that she had an urgent medical need. After that humiliating experience, Ally successfully worked with legislators in her then-home state of Illinois to enact a law to address similar situations in 2005. Since then, with continued public advocacy by Ally and others, similar laws have been enacted in twelve other states: Colorado, Connecticut, Kentucky, Massachusetts, Michigan, Minnesota, Ohio, Oregon, Tennessee, Texas, Washington State and Wisconsin. As these are individual state laws, they each vary in certain details, but most say that a “retail establishment” must give a person with an “eligible medical condition” access to an employee restroom if there is no public restroom immediately available, there are at least three employees (in one case, two) working at the time, and the facility itself or its location will not pose a safety hazard to the person or security risk to the business (www.ibsimpact.wordpress.com)."


Below is a photo of my pass:




So, I sure hope any of you who work retail out there or own a business will always let someone with a medical condition use your restroom. Even if you feel more comfortable escorting them and waiting outside the door, we don't care! We just need a toilet. :)

3 comments:

  1. I recently had a situation in a clothing store when all of a sudden "it hit." The only stall in the men's room was in use. I briefly told a nearby employee my situation and she led me to the employee restroom. It was extremely embarrassing to have to ask (though not nearly as embarrassing as the alternative) and I was quite thankful for the understanding of the employee.

    I wish it always worked that way. I even live in one of the states you list, but have never heard of the law as a Crohn's patient or a retail employee.

    I'm going to have to look it up and maybe get one of those cards.

    Thanks for sharing.

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  2. Hey! I too have Crohn's and found your blog through Pinterest. It's so nice to be a part of a support group and to hear others with similar struggles. My GI Dr. currently has me on 6mp and prednisone after starting a horrible flare in Sept. He has mentioned putting me on Cimzia, but it terrifies me! How are you feeling with the Cimzia? Any side effects? The 6mp can cause birth defects, so my dr says that Cimzia is safe for "trying" later on for a baby. Feel free to email me: becca_boo17@yahoo.com

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  3. Misspriss82,

    Cimzia shouldn't terrify you. It has helped me, and the injection part is really not that bad. I have gotten used to it! No side effect from the Cimzia at all. I was told my immune system would be lowered, and I would be susceptible to many sinus infections and other types of infections. But in 5 months, I have only had 1 small sinus infection. My husband and I for sure want to have children later on, and that is why my doctor put me on Cimzia. She said it is the safest Crohn's drug to be on if I am pregnant. I was willing to try that to get off the prednisone. I hate that stuff. I am much happier now. I am doing better. Now since I have been on the Cimzia for a while now, I am in the midst of slowly wheening off my other drugs that are really not needed. It's just a slow process, because my body has been so used to having those in my system for a year and a half. (Pentasa and Entocort-anti-inflammatories) I would say go for it and try it! I'm so glad you found me on Pinterest! Keep following me :)

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